Fragilex - fragilex.org - National Fragile X Foundation
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The Mathias Fragile X Fundraiser, Rogers Neighborhood Family Fund and more! 21 Aug 2013 | 10:25 pm
Summer may be a time of R&R in the rest of the world, but our devoted Fragile X fundraisers always seem to use the warm months to heat up their engines and put their creative energies into overdrive. ...
Webinar: Let’s Talk: Back to School 21 Aug 2013 | 04:38 am
Date: Wednesday, August 28, 2013 Time: 8:00 PM Eastern / 7:00 PM Central 6:00 PM Mountain / 5:00 PM Pacific Description Back-to-school can be a time of high anxiety not only for children but for...
All Genes Are Not Created Equal 15 Aug 2013 | 10:54 pm
The gene and protein responsible for causing fragile X syndrome emerges as a leading candidate in the search for the cause of autism and maybe even schizophrenia. The little known FMR1 Gene was first...
Fragile X Drug Developer SAGE Therapeutics Names New Chief Executive 15 Aug 2013 | 06:54 am
Two weeks after receiving a grant worth up to $10 million from the National Institutes of Health, SAGE Therapeutics has a new boss to oversee all that money. The Cambridge life science company on Wed...
Transitioning Back into School 14 Aug 2013 | 08:40 pm
General Ideas for All Grades Photo by woodleywonderworks. Courtesy of Flickr Creative Commons. Go to the school open house and take lots of pictures or videos. Include all the rooms your child will ...
Download: My State’s Seclusion and Restraint Laws 7 Aug 2013 | 10:23 pm
Photo by Kate Tee harr. Courtesy of Flickr Creative Commons. The start of the school year is just around the corner—hold on now, breathe deeply, it’s going to be OK! One of the many things you may n...
LINKS: One Busy and Awareness-Based July! 7 Aug 2013 | 02:42 am
The NFXF LINKS Support Network groups are very busy all year long, filling members’ calendars with social events, educational seminars, fundraisers, business meetings, advocacy and awareness opportuni...
Commentary on SAGE Therapeutics Grant to Study Fragile X Syndrome 6 Aug 2013 | 10:22 pm
We reached out to Elizabeth Berry-Kravis, MD, PhD member of the Scientific and Clinical Advisory Committee regarding the NIH’s new Neurological Drug Development Project with SAGE Therapeutics. She say...
Research: Language Development in Boys with Fragile X Syndrome 6 Aug 2013 | 09:29 pm
This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of Waisman Center at the University of Wisconsin-Madison. The announcement and the parties conduct...
Stanford: Help Explore the Ethical, Legal and Social Implications of New Prenatal Genetic Tests 2 Aug 2013 | 01:08 am
This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of Stanford Center for Integration of Research on Genetics and Ethics. The announcement and the pa...
