Lupusfamily - lupusfamily.com - My Wife Has Lupus

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Moving Soon 8 Mar 2012 | 08:47 pm

I just wanted to let everyone know that this site will be shutting down in the next few months. I will transfer the content to a new server as an archive, but I haven’t decided if I will update any co...

A Delicate Balance 29 Aug 2011 | 01:32 pm

I don’t know how many of you deal with this, but I find it interesting how my wife and I maintain this delicate balance of dealing with her illness and making believe that it isn’t real. Obviously, we...

Back to Basics 7 Jul 2011 | 05:28 pm

I admit the whole BuddyPress experiment was a failure. I checked this evening and there were thousands of spam users and splogs. It will take a little time, but I installed a plugin to delete all of i...

Holding Pattern 24 Mar 2011 | 06:54 am

Now that Benlysta has been approved, we are in a holding pattern, waiting for doctors and insurance to come together on a treatment plan. I am also in a holding pattern in terms of this site. I just ...

Benlysta awaiting FDA approval 17 Nov 2010 | 08:24 am

An FDA advisory panel is considering today if they will recommend Benlysta for FDA approval. You may want to do a quick search for up-to-date information. I read that there were some concerns that the...

Lupus Family 26 Sep 2010 | 12:23 pm

Things will start to look a bit different around here, and I hope it will be a change for the better. When I started lupusfamily.com a few years ago, I wanted to do something that might make a differe...

Waiting for Benlysta 2 Sep 2010 | 10:15 am

I haven’t really had much to say lately. However, I was curious about how many people are having the same kind of conversations about the new medication, Benlysta. My wife’s lupus hasn’t been in remi...

Lupus and Acid Reflux 26 Jun 2010 | 04:54 am

My wife has struggled with Gastroesophageal reflux disease for years now. I imagine that this is fairly common with anyone who has to take the amount of medication that she does. She’s tried all kind...

Interviews 4 Jun 2010 | 09:06 am

A couple of interviews involving lupus came out this week. The first one was at The Lupus Magazine, and featured Jenny. Here’s the link if you want to check it out – From Figure Skater to Opera Singe...

Hope Through Song 28 May 2010 | 05:21 pm

My wife has had this project on the back burner for some time now. She would like to start producing music that will inspire those with lupus and educate those who do not know how this chronic illness...

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