Breathing a sigh of relief 30 May 2019 4:29 PM (6 years ago)
The lung phone rang today with the news of new lungs for Evan! It might be a long road ahead of us but we are on the post transplant road!! It has been a long day but on the flip side it has flown by and I am pretty sure I am living in the […]
Happy Earth Day, the audacity of Hope (& if you are looking for my lipstick it is in the freezer) 22 Apr 2019 4:54 PM (6 years ago)
Happy Earth day to you all! I found the picture below in my daughter’s room this morning. It made me so happy and hopeful. She said I could post it as long as I give her credit. All artistic credit goes to @lyssa_and_art on instagram. As many of you know Evan, the twins and I […]
Premature Babies. An assignment in Empathy. 14 Dec 2018 5:34 PM (6 years ago)
My son Fletcher was given a school assignment to create a project that focused on empathy and raised awareness about an issue. Since his brother Jake was born prematurely (14 weeks early) and died at two weeks old, he focused on premature birth. He decided to make this comic. It is dedicated to Jake and […]
“Der Mentsh Trakht Un Got Lakht” (people make plans and G-d laughs) 3 Sep 2018 11:58 AM (7 years ago)
A very wise man, my grandfather, always used to say “mentsch tracht, Gott lacht.” For those of you (like me) who do not speak yiddish this means “men make plans and G-d laughs.” I have updated the saying just a little to “people make plans and G-d laughs.” Evan is sick and he needs a double lung transplant (he never smoked, doctors […]
Harriett R. Taylor 18 Aug 2018 4:18 PM (7 years ago)
In my family, August is pretty packed with birthdays, anniversaries and deathiversaries. Today along with being Evan’s dad and stepmother’s wedding anniversary it is also the date when my Aunt Harriett died (21 years ago). Although it has been over 2 decades, I can still feel the pit in my stomach that formed when I […]
13 14 Aug 2018 3:36 PM (7 years ago)
Happy birthday Jake! I am so very thankful that you were born. Your dad and I miss you every day, but some days are just a bit harder. What kind of teenager would you be? Would you be testing my and your dad’s patience? What would you look like? Would you have had a bar […]
July is Bereaved Parents Month 10 Jul 2018 3:30 PM (7 years ago)
“We may look as if we carry on with our lives as before. We may even have times of joy and happiness. Everything may seem normal. But this, EMPTINESS is how we all feel, all the time” ~ John Maddox, for Bereaved Parents Month (The artwork is called Melancholy by Albert György in Geneva, Switzerland) […]
Practicing Positivity 26 Apr 2018 6:22 PM (7 years ago)
It is nice to think about trying to make a positive change come out of a negative situation. But no one can truly make the death of a child into a positive. That pain never goes away. This is my reality; our reality. I miss Jake and Sawyer every day. I ache for them always. […]
Please Help Save Lives 11 Feb 2018 2:52 PM (7 years ago)
Jake and Sawyer’s short lives have taught me many tough lessons. One, which I already “knew” (but now know with much greater depth and understanding) is how terrible losing a loved one really is, whether it is a child, a parent, a spouse, a grandparent, or anyone who you are close to. That loss and the […]