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Go the Extra Mile for ME – and Your Favourite ME Charity 27 Aug 2013 | 04:59 pm
by Sasha Though notes would be good… Photo: Catalina Olavarria/Flickr ‘Go the extra mile,’ you’re thinking, as you lie on your sofa. ‘I can’t go the extra inch. This isn’t some sponsored walk thing,...
The Subverting of the ME/CFS Mind 24 Aug 2013 | 04:45 am
by Jody Smith Of all the things ME/CFS is responsible for causing in our brains, this may be one of the biggest. Before I was lambasted by ME/CFS, I was an idealistic and trusting sort, loyal to a fa...
Talking with CFSAC – Views from the other side of the table 20 Aug 2013 | 01:43 am
Gabby (Nielk) looks at the background to The Chronic Fatigue Syndrome Advisory Committee (CFSAC) and interviews 5 members including the Chairman… ”Any committee is only as good as the most knowledge....
A Dozen Different Diseases? Stephen Holgate Calls for Radical Change in ME/CFS Research 15 Aug 2013 | 11:35 pm
Professor Stephen Holgate says ME/CFS is a spectrum of disorders that need to be understood through new approaches, and patients must be partners in research. Simon McGrath reports. Houses of Parliam...
The UK Rituximab Trial: A Study in a Hurry 12 Aug 2013 | 12:58 pm
by Sasha London: site of the proposed UK Rituximab trial Photo by fussy onion/Flickr On June 6, the Norwegian Medical Research Council agreed to give a large enough grant to the Haukeland Rituximab ...
Dental Health: Yet One More Challenge For Those With ME/CFS 9 Aug 2013 | 12:23 pm
by Jody Smith Poor dental health may not be at the top of the list when you think of ME/CFS problems. But many of us who have been sick for any length of time can tell you some horror stories about o...
August 8th – Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis 6 Aug 2013 | 07:52 pm
Gabby (Nielk) reports on the launch by The 25% Group of this special day of understanding and remembrance for those severely affected by ME I wrote the poem below about two years ago, in the midst of...
CDC Study Must Include CPET, NK Cell and Viral Testing, Advocates Insist 2 Aug 2013 | 05:53 pm
Mark Berry invites readers to join 11 organizations and 31 advocates and write to the CDC, asking them to include appropriate medical tests in their multi-site study. The historical approach of the U...
Repeat Test Reveals Dramatic Drop in ME/CFS Exercise Capacity 30 Jul 2013 | 03:56 am
Hooked up for a CPET Simon McGrath reports on Dr Snell’s new study demonstrating that ME/CFS patients have a reduced capacity to exercise when they repeat a maximum exercise test one day on – unlike ...
ME/CFS and the Poverty Diet 25 Jul 2013 | 12:14 pm
by Jody Smith Chronic illness and the Poverty Diet often go together. Far too often. I was on the Poverty Diet for many years. I have ME/CFS, my husband Alan deals with crippling past injuries and fi...
