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NFL Great Howie Long Is Still Fighting Against SMA 16 Aug 2013 | 07:39 pm
Hall of Fame NFL Defensive End Howie Long is fighter … that much is obvious if you look at recordings of his playing days. What many don’t know, however, is that he stands side-by-side with us in our ...
Jack Bolton Making Waves as Coach of the Carolina Panthers 8 Aug 2013 | 09:34 pm
Coach Jack Bolton (photo credit Brian Christiansen) The Bolton Family of North Carolina are longtime friends of FightSMA, so we were extremely excited to see that their son, Jack, was recently named ...
Project to Optimize Testing Measures for Spinal Muscular Atrophy Clinical Trials 7 Aug 2013 | 08:00 pm
In order to ensure accurate measurement of patients’ responses to experimental drugs, a research project is being conducted to enhance and improve the rating scales currently being used in SMA clinica...
Three Ways to Help During SMA Awareness Month 1 Aug 2013 | 11:18 pm
August is SMA Awareness Month. Spinal Muscular Atrophy, or SMA, is a disease that most people don’t know about. However, if you’re reading this, it’s likely you’re already intimately acquainted with i...
The 8th Annual Ride for Corinna’s Angels is July 14! 10 Jul 2013 | 10:00 pm
This Sunday, July 14, the community in Cranston, Rhode Island will gather for the 8th Annual Ride for Corinna’s Angels (FightSMA Rhode Island). Registration begins at 9:30AM and the motorcycles go out...
Update: The NPRNA Is Moving Forward and We Need Your Help! 24 May 2013 | 10:50 pm
FightSMA continues to press for enactment of S.424/H.R.225, the National Pediatric Research Network Act (NPRNA), bipartisan legislation to support collaborative pediatric research including multi-site...
Update: Party With A Purpose 2013 a Smashing Success! 21 May 2013 | 09:28 pm
An update from FightSMA Hanover’s Carice Smith, coordinator of Party with a Purpose 2013: $37,000…THAT is the astounding amount Party With A Purpose generated for SMA research! Thanks just doesn’t see...
Why We Do What We Do: The “Purpose” of Our “Party”! 2 May 2013 | 10:36 pm
Written by Carice Creighton Smith, head of FightSMA Hanover and this month’s Party with a Purpose 2013. Every day, kids with SMA fight a fierce battle just to live. Spinal Muscular Atrophy (SMA) kills...
2013 FightSMA Research Conference Slideshow 29 Apr 2013 | 06:56 pm
We took many, many pictures during this year’s FightSMA Research Conference, held in Washington D.C on April 11 and 12. Below is a slideshow featuring some that we selected. For a wrapup of this year...
2013 FightSMA Research Conference Wrapup 26 Apr 2013 | 09:11 pm
On April 11 and 12 , FightSMA and Spinal Muscular Atrophy researchers from around the world gathered for this year’s FightSMA Annual Research Conference in Washington, D.C. The conference brought toge...
